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Last week I told you about the sabotage of the government research into vaccination as a cause of autism... today it is time for you to protest.
The federal members of the IACC cannot be allowed to get away with these tactics.
From the Autism Action Network (formerly A-CHAMP)
Take Action!
Send a Letter to Your Reps, Key Officials and The Interagency Autism Coordinating Committee
Autism Action Alert:
Protest Federal Autism Committee’s Deceitful Reversal on Vaccine-Autism Research
Click HERE or "Take Action" On This Email To Send A Message Using Our System
If You Are Reading This Message On Our Web Site Scroll Down to Send a Message
The inexcusable actions of the Federal members of the Interagency Autism Coordinating Committee (IACC) in retracting vaccine-autism studies must be stopped. Sound science must move forward, not thwarted by Federal agencies with vested interests in on-going vaccine-autism injury litigation.
The autism advocacy organizations listed below implore parents of children with autism - and all those who care about the burgeoning rate of autism and its toll on the health of our children - to take immediate action.
We are asking you to write a letter of disapproval to key government decision-makers on autism. Click here for a sample letter and instructions on sending. Your letter will be sent to President Obama, your Senators and Representatives, HHS Secretary Tom Daschle, the Senate HELP Committee, Senators Christopher Dodd, Joe Lieberman, and Edward Kennedy, and Congressmen Chris Smith and Joe Barton.
Your letters are needed NOW. The next IACC meeting is Wednesday, February 4, 2009 - less than two weeks away!
Here is what happened. Click here (http://www.safeminds.org/pressroom/iacc-blocks-vaccine-autism-research.html) here (http://www.ageofautism.com/2009/01/iacc-rescinds-vaccine-research-initiatives.html) for more details.
In a highly unusual departure from procedure, government representatives to the IACC voted on January 14th against conducting studies on vaccine-autism research despite approval of the same studies at their prior meeting on December 12, 2008. The research was supported by numerous autism organizations and requested by IACC’s scientific work groups and Congress. The maneuver to re-vote was initiated by the IACC’s representative from the CDC and pushed through by the IACC Chair, Dr. Tom Insel, Director of the National Institute of Mental Health of NIH. Review of the studies was not listed on the committee’s official agenda, in violation of normal committee practice.
Unlike most Federal advisory committees, the IACC is dominated by government representatives occupying 12 of the 18 seats. Dr. Insel admitted at the meeting that HHS agencies (which includes NIH and CDC) have a conflict of interest in conducting vaccine-autism research due to “Vaccine Court” litigation in which HHS is the defendant. Of the 6 non-government (public) members, 5 voted to retain the vaccine research at the January meeting. The lone dissenting public member resigned from her organization, Autism Speaks, the night before the meeting. Autism Speaks has issued a statement denouncing her vote.
The Federal members of the IACC must know that the autism community objects to their manipulation of committee procedures to block unbiased research on the possible link between vaccines and autism.
They must hear that parents demand reinstatement by the IACC of the vaccine studies that were already part of the IACC’s Autism Research Strategic Plan, and to restore the funding already allocated to this research.
They must acknowledge the inherent conflict of interest of the NIH/CDC in conducting research on vaccine safety. Research initiatives MUST be coordinated by an independent committee that includes equal numbers of representatives from the autism-vaccine injured community and conducted by independent and non-biased entities.
We also urge parents to attend the February 4th IACC meeting in Washington DC if they are able to. Click here for the IACC website http://iacc.hhs.gov/events/ to register. We encourage you to sign up to make a public comment at the meeting.
Autism Action Network (AAN)
Autism One
Autism Research Institute
Generation Rescue
National Autism Association (NAA)
SafeMinds
Schafer Report
Talk About Curing Autism (TACA)
U.S. Autism & Asperger Association
Unlocking Autism
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"To the families of special needs children all across this country, I have a message for you. For years you've sought to make America a more welcoming place for your sons and daughters and I pledge to you that if we're elected, you will have a friend and advocate in the White House".
-Sarah Palin
John McCain meeting with A-Champ in November of last year:
There is still two months until the election, and there is plenty of time for Barack Obama to sit down with our community, and to use his position on the Senate Health Committee to make real CHANGE for children. If he does, he may take the poll position as the best autism candidate, but at the moment, unless things change dramatically, I will be endorsing McCain/Palin.
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From A-Champ:
AFLAC JUST INFORMED US THEY ARE PULLING THEIR ADS FROM THE SAVAGE NATION PROGRAM! Thank You AFLAC The Autism Action Network Was Contacted Today By Sears to Say They Do Not Advertise On Talk Show Host Michael Savage's Show. We say thank you to Sears for letting us know. We are removing Sears from our contact list. We are advised that Home Depot informed Autism United that they do not advertise on Savage's show.
Some objected to our link to the Media Matters web site. We have no connection to Media Matters and have no opinion one way or another about their work. Our link was placed on our alert because Media Matters posted the audio on their web site of Savage's offensive comments about individuals with autism. One more thing: we don't care whether or not Savage stays on the air. We really do not care what he says, except we demand respect for our children with autism.
Respect!
That's What We Want For Our Kids! We Demand Respect for Our Children and All Individuals With Autism!
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From A-CHAMP:
Talk Radio's Michael Savage Trashes Individuals With Autism –/ Act Now To Show His Conduct Is Not Acceptable!
Michael Savage Calls Children With Autism "Brats" and Autism a "Scam"
Take Action!
Use the Autism Action Network to Tell Savage's Broadcasters and Sponsors What You Think of Savage and His Offensive Remarks
OFFENSIVE!
That's What We Call The Words of Trash Radio Host Michael Savage
(t/n Michael Weiner)
Take Action Against Michael Savage's Remarks!
"Idiot" "brat" "moron"
These are just a few terms Savage used to describe children with Autism on his radio program. He went on to say autism, a lifelong debilitating disorder that leaves many children without the ability to speak and in constant pain, was a "fraud" and a "racket" perpetrated by inept parents.
Do not permit Savage's offensive statements to go unchallenged. Savage and his broadcasting syndicators must be held accountable for his hateful and ignorant tirade. Contact his sponsors and demand that they withdraw their support. Most reasonable people, and most for-profit corporations, do not want to be identified as oppressors of the disabled. Your words will have great impact and will make the choice clear for them.
To Hear Savage's offensive comments for yourself with some helpful commentary that puts him in his place, click on these links:
http://injectingsense.blogspot.com/2008/07/beyond-ignorance-beyond-offensive.html
http://mediamatters.org/items/200807170005?f=h_top
Send a message to Savage's broadcasters, syndicators and commercial sponsors:
(Use our messaging system to contact them but also fax and call them directly – where a web address email is indicated go to their web site):
Buckley Broadcasting/WOR Radio
General Phone Number: 212 642 4500
111 Broadway 3rd Floor, New York, NY 10006
Home Depot
public_relations@homedepot.com
(770) 384-4646
Sears
Sears Public Relations And Communications
(847) 286-8371
contact through their website:
http://www.searsmedia.com/tools/inquires/feedback.htm
Radioshack
Media Relations_
Riverfront Campus _Mail Stop #CF7-130_300 RadioShack Circle _Fort Worth, TX 76102-1964_
Phone: (817) 415-3300_
Fax: (817) 415-2585_
E-mail: media.relations@RadioShack.com
AFLAC
1-800-99-AFLAC (1-800-992-3522)
Laura Kane, 2nd Vice President External Relations Aflac Incorporated_1-706-596-3493
Mechell Clark_
Media Relations Manager_
1-706-243-8004
news@aflac.com
Budweiser
Anheuser-Busch, Inc.
One Busch Place
St. Louis, MO 63118
Email through their site:
http://contactus.anheuser-busch.com/contactus/email.asp
1 800 DIAL BUD
(1 800 342 5283)
Michael Savage
michaelsavage@paulreveresociety.com
Talk Radio Network
Talk Radio Network
Talk Radio Network
P.O. Box 3755
Central Point, Oregon 97502
Phone: 541-664-8827
Fax: 541-664-6250
The Savage Nation
The Savage Nation
The Paul Revere Society
150 Shoreline Hwy, Bldg E
Mill Valley, CA 94941
Fax: 415-339-9383
Here is a sample message you can use:
Dear Michael Savage Sponsor or Supporter:
We have learned that your company sponsors or supports Michael Savage's radio program.
On a recent program, he attacked children with autism, claiming that autism was a fraud and a scam. He went on to say:
"I'll tell you what autism is. In 99 percent of the cases, it's a brat who hasn't been told to cut the act out. That's what autism is."
Savage also used offensive terms to describe autistic children, such as "idiots", "morons" and more.
We parents and family members of an individual with autism will not tolerate Savage's offensive and unacceptable conduct. We respectfully request that your company withdraws their advertising dollars from his programs and, if you broadcast or syndicate his radio show, that you dismiss him immediately.
Autism affects 1 in 150 children in the USA. Each of those children has a circle of family, friends and supporters who share the concerns of the child. We would say that there are likely 10 people for every child with autism who shares that child's concerns.
When you consider this request, please consider that as many as 1 in 15 Americans will be watching your decision and how you react will have a powerful impact on their opinion of your company.
We hope and trust that you will do the right thing.
Respectfully,
The Autism Action Network
Message Brought To You By A-CHAMP
Advocates for Children's Health Affected by Mercury Poisoning
See Our Action Alerts. Click the TAKE ACTION! button
http://capwiz.com/a-champ/home/
www.a-champ.org
BE A-CHAMP FOR CHILDREN!
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From A-CHAMP: Read David Kirby's Editorial,"Give Us Answers on Vaccines" in the Atlanta Journal Constitution Today - and then call Congress!
Tell Your Congressional Representatives that You Want Answers!
Today's Atlanta-Journal Constitution contains an editorial by David Kirby entitled
We have recently had a glimpse of the truth about the link between vaccines and neurodevelopmental disorders like autism. When the news was revealed by the Poling family that the government conceded that vaccines caused their daughter, Hannah's, autism, we had a window into the truth about vaccine safety and what has happened to a generation of children.
But the Poling documents and the truth remain sealed!
We want to parents and family members to call Congress...call...call...and keep calling, and demand the
Truth about vaccine safety,
Truth about whether vaccines have harmed our kids and
JUSTICE for our children!
Talking points suggestions:
We need the truth about vaccine safety.
For years the government has denied any association between vaccines and neurodevelopmental disorders such as autism. In private, public officials have conceded that vaccines have caused autism, such as in the government's recent concessions in the Poling case. Vaccines have been found to have caused autism in at least nine other cases considered by our public officials.
Our kids were damaged because because of the vaccine program, but the government told us vaccines were safe. Our children missed the statute of limitations because we trusted the CDC when they told us repeatedly there was no association between vaccines and neurodevelopmental disorders. We want the Poling documents released.
We want access to the VSD, the publicly financed Vaccine Safety Datalink database that may answer important questions about vaccines and their relationship to neurodevelopmental disorders such as autism.
We want the statute of limitations extended with a look back so that hundreds of thousands children harmed by vaccines are allowed access to justice. Right now they have no right to make claims and obtain justice.
If Congress can hold hearings on Roger Clemens's steroid use, our elected representatives can hold hearings on why hundreds of thousands of children are suffering with neurodevelopmental disorders in an unprecedented epidemic.
We want the CDC and the FDA held accountable. "Millions of parents are anxiously waiting for their government to tell them what the hell is going on." CALL YOUR REPRESENTATIVES, AND KEEP CALLING UNTIL THEY ANSWER YOU AND AGREE TO SUPPORT OUR KIDS . "We are everywhere and we are not going away!"
...and we are coming to Washington in June.
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The CDC truly has no shame. They didn't even include autistic children in this study. How much you wanna bet that dispite this fact, we will be reading media headlines that say, "new CDC study proves that vaccines not linked to autism". Exclusion of low birth weight babies, 70% participant drop out rate, focusing on blood mercury levels and ignoring brain mercury, conclusions not backed up by the data, conflicts of interests with all the researchers and on and on... It is like a greatest hits of all the bad research done in the last decade wrapped up in one convenient package. This thing looks to be Verstraeten all over again. Thanks to A-CHAMP for the heads up. Dear A-CHAMP subscribers:
On September 27, 2007 the New England Journal of Medicine will publish a study entitled, "Early Thimerosal Exposure and Neuropsychological Outcomes at 7 to 10 Years." For more than two years we at A-CHAMP have been hearing rumors of a new study that "exonerates" thimerosal, despite the fact that the study results were supposed to be kept strictly confidential.
Now the rumors have been turned into hype - another government funded study that tries to spin data and clear thimerosal of any suspicion of causing neurodevelopmental disorders. The study authors claim in their "Conclusions" that " ur study does not support a causal association between early exposure to mercury from thimerosal-containing vaccines and immune globulins and neuropsychological functioning at the age of 7 to 10 years."
The statement is plainly false. The study's conclusions do not reflect the study's data or the limitations of the study,
Unfortunately we have come to expect misleading statements – some might say fraudulent statements – from studies emanating from the CDC and their associates. It is not merely the fact that the authors of the study are burdened by large conflicts of interests - almost all of the 18 study authors have worked for vaccine manufacturers, received money from them, or performed research on their behalf. What is truly shocking about this study is that it does, indeed, find significant associations between thimerosal-containing vaccines and tics, speech, executive functioning and attention, but irresponsibly dismisses the associations. The study did not even look at children with autism – that is the subject of another uncompleted study – and children who might be more vulnerable to mercury, like low birth weight babies and children from families with lower incomes, were excluded or under-represented in the study sample
Fortunately, an advocate from our own community was an external consultant to the study, participated in its development from the outset, and is intimately familiar with the data and methodology. She has dissented from the study's conclusions. In addition, our colleagues and fellow parents at SafeMinds will be issuing a critique of the study in the near future. We are also told that the study data will be made publicly available so that independent researchers may examine it and draw their own conclusions.
Although detailed analysis of the study is beyond the scope of this letter, below are some key points that cause us to distrust this study as another attempt to manipulate the scientific and public debate on thimerosal to the detriment of the health and safety of America's children:
1. The Study's Claim of No Causality is Contrary to the Study's Data
The study authors claim that the data disproves causality when in fact, several findings show a negative effect on neuropsychological functioning warranting more study. At least one such adverse association was also found to be associated with low dose thimerosal exposure in other studies. As with earlier studies hyped by vaccine promoters, the study is unable to prove or disprove causality. The blanket dismissal of the troubling neuropsychological outcomes in this study is disingenuous and misleading.
2. Children with autism were excluded from this study
The early media contacts we have received suggest that this study shows no association between thimerosal and autism. In fact, the study specifically did not look at children with autism as the sample size was too small and the testing is impossible to complete for the typical child with autism. The exclusion of children with autism from the study may have undermined the power of the study to draw any conclusions about thimerosal.
3. The Study's Authors Misrepresent Previous Toxicokinetic Studies of Thimerosal
The study authors falsely claim that research by Burbacher et al. at the University of Washington (distribution of thimerosal as compared with methylmercury in infant monkeys) shows that ethylmercury is safer than methylmercury. But the authors focus only on the blood "half-life", ignoring data, showing twice as much inorganic mercury trapped in the brains of monkeys than from same dose of methylmercury.
4. The Study's Methodology has Serious Limitations Negating Any Conclusions Drawn
Major flaws that that causes a large underestimation of neurological adverse effects burden the study: 70% of the families recruited for the study failed to participate. This kind of bias in epidemiological studies is well known to distort even large studies of health effects. (See , for example, NY Times Magazine, "Do We Really Know What Makes Us Healthy" by Gary Taubes 9/16/07). It is well established that people who choose to participate in this kind of study are probably very different than those who refuse to participate (the "healthy person" or "complier" effect); especially when the ones who refused to participate said they were too busy.
Simply put: if you have a kid with ADHD or mild ASD or other neurodevelopmental disorders, you are likely to be busier, more stressed, and less available than the mother of a healthy normal child. This phenomenon serves to amplify the effect of the "complier", the "healthy families," - those who do cooperate with the study - confounding or confusing the study's results. The cooperative parents included in the study were more likely to be those with relatively trouble-free kids
5.Major Conflicts of Interest Burden Almost Every One of the 18 Study Authors
Many of the study authors have either worked for or received money from vaccine manufacturers. Others are employed by the CDC, which has been criticized by an IOM committee for its inherent conflict of interest in promoting vaccines while simultaneously monitoring safety. Many of the remaining study authors have conducted studies for vaccine manufacturers. The conflicts of interest cast doubt on the validity of the study, especially of the clearly biased final conclusions.
6. The High & Low Thimerosal Exposure Groups Too Small to Draw Conclusions
In addition to the number of children of the study being too small to draw statistically significant conclusions, the numbers of children in the high exposure group and the low exposure group were far too small to draw conclusions. Yet the study ignored this limitation and drew sweeping conclusions of no causality.
7.Vulnerable Children Were Excluded from the Study; Early Intervention Was Ignored
Children with a birth weight under 5 lbs. 8 oz. were excluded from the study further skewing the results, as these children are likely more vulnerable to thimerosal than larger babies. In addition, the fact that early intervention may have reduced deficits such as speech delay detected by neuropsychological testing of children aged 7-10 was not accounted for in the study results. There also was no analysis of combined prenatal and postnatal mercury exposures. Only 103 mothers who were exposed to mercury from prenatal immune globulins participated in the study, far too small a group for researchers to draw conclusions regarding the safety of thimerosal in these products.
8. The Study Fails to Account for the Subset of Children with "Efflux Disorder"
Only approximately 1000 children participated in the study, out of more than 3000 that were recruited. In addition to the "complier" bias discussed above, the study sample size is too small to accurately estimate the adverse effect of Thimerosal on the subset of the population who have a problem in mobilizing and excreting mercury. While the study's author's focus on the average time it takes for mercury to clear from the blood, itself misrepresented, we know that in 15% of the population this average is greatly exceeded. It is these children who are vulnerable to the effects of mercury from thimerosal. This study fails to account for the effect of mercury from vaccines on this subset of children.
These are but a few of the serious problems with the study and the way the data have been presented. We look forward to the forthcoming SAFEMINDS critique of the study and thank them for their continued close monitoring and analysis of the scientific research that affects our children.
In the meantime, if you see headlines stating that "Vaccines Cleared in New Study" or "New Study Finds Thimerosal Safe" know that we are all again being played, and that those who we should be able to trust are compromising the truth and the health of our children.
Sincerely, Bob Krakow, for A-CHAMP
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Every Child by Two is urging their membership to call congress and oppose this amendment that would make vaccines safer. Here is everything you need to know about Every Child By Two: Board Members:
Craig Engesser Senior Director, Professional Affairs Wyeth Pharmaceuticals
Paul Offit, MD Chief, Section of Immunologic and Infectious Diseases The Children’s Hospital of Philadelphia Call your Congressman From A-CHAMP: Congressional Vote on Mercury Ban Expected
Contact Your Member of Congress ASAP!!!
Take Action! This past Wednesday, July 11, the House Committee on Appropriations adopted by voice vote an amendment that prevents federal dollars from being used to provide flu vaccines, that contain mercury as a preservative, to children under three years of age. This amendment, offered by Rep. Dave Weldon (R-FL) was based on legislation that he has introduced with Rep. Carolyn Maloney (D-NY) to completely ban mercury from all vaccines. This bill will come to the floor of the House of Representatives on July 17.
Action You Must Take Today! You need to e-mail of fax write your member of Congress today. You may use our automated system to send an email by Clicking Here.
If you want to call or fax your Congressman and don’t know who your Member of Congress is you can find out by Clicking Here or going to http://capwiz.com/a-champ/directory/congdir.tt Your Congressman's contact information can be found there.
E-mail your Member of the House of Representatives AND CALL their office (Congressional Switchboard 202-224-3121 can also get you to your Congressman by phone).
Here is suggested text for a letter if you wish to send a fax or a manual email. The text is also in our pre-written email if you wish to use our automated system: I am writing you to urge that you vote against any amendment that removes from the FY 2008 House Labor/HHS Appropriation bill the provision that bans mercury (thimerosal) from childhood flu vaccines. I am very concerned that an amendment may be offered on the House floor when this bill is considered that would strip this important provision from the House bill. As my representative, I urge you to vote against any amendment that would leave babies exposed to mercury-laced flu vaccines.
There is no other way to put this - It is just a stupid practice to be injecting babies at 6, 7, 12 and 24 months with the neurotoxin mercury particularly at such a critical stage of neurodevelopment. The House Appropriations Committee agreed overwhelmingly that injecting children with mercury is a bad idea when they adopted an amendment on July 11 offered by Rep. Dave Weldon - a physician. The developed world other than the United States has essentially banned mercury from all of their childhood vaccines, including the flu vaccine. But, the USA continues to use mercury as a preservative in millions of doses of the flu vaccine given to children. Seven years ago, in 1999, the following concensus was reached by the US's leading public health agencies: “[The] Public Health Service, the American Academy of Pediatrics, and vaccine manufacturers agree that thimerosal-containing vaccines should be removed as soon as possible. Similar conclusions were reached this year in a meeting attended by European regulatory agencies, the European vaccine manufacturers, and the US FDA which examined the use of thimerosal-containing vaccines produced or sold in European countries.”
That was in 1999. In October 2004 the House Appropriations Committee held a hearing on the need to remove mercury as a preservative from childhood flu vaccines. Now, three years later virtually no action has been taken by the CDC, AAP or vaccine makers to eliminate mercury preservative from childhood flu vaccines. The time to end this madness is long overdue.
I appreciate in advance your vote against any amendment that would weaken the Weldon provision that protects babies from exposure of babies to this dangerous neurotoxin. I will be reviewing the record vote on this issue should an amendment be offered to strip this provision. Thank you for protecting our babies.
Message Brought To You By A-CHAMP Advocates for Children's Health Affected by Mercury Poisoning See Our Action Alerts. Click the TAKE ACTION! button
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Autism United Challenges NY State Special Ed Chief's Denial of Autism Increase
Autism United, a new organization of parents and service organizations, today (7/8/07) submitted a letter to the NY State official in charge of special education policy challenging her statement that "diagnostic shift" explains the increase in the number of children with autism. The NY official's statement, quoted in a July 8, 2007 NY Times article reporting about supposed declining rates of children in special education, is the latest troubling statement by a public official denying the reality of the autism epidemic. Denial of an autism epidemic would justify a public policy denying the expenditure of public funds on the education of children with autism....
Read the whole thing.
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